I'm going to change the way I write these posts from now going forward. Instead of reporting the details of my surgery recovery experience each week, I'm going to focus (pun!) on the reason why I'm really writing this blog: To give fellow patients an idea of the changes in my vision as the weeks after surgery went by.
First of all, I found out that I had been given the longer acting of the various gases that are used in vitrectomy surgery. The gas is called perfluoropropane or C3F8. My doctor told me that it would take about eight weeks for the bubble to disappear. As I said before, there is no way that a person can see anything but light and dark with a big gas bubble in the eye (except that I was able to see things held directly below the eye a few inches away). But as the bubble gets smaller over time, we are supposed to be able to begin to see again. But since the shrinking of the bubble is such a slow process, especially with C3F8, I think it is natural to be impatient and to wonder what we should be seeing and what we should look for and where in our field of vision we should look for it.
As the bubble shrank, the edge of the bubble showed up as a dark line in my vision, near the top of my visual field. Strangely, even though the bubble sits at the top of the eye, it looks to the patient like the bubble is in the bottom of the eye. That's hard to get used to at first. When you start to see the dividing line near the top of your vision, it looks like a bubble is floating on the surface of liquid in your eye. But what looks like a bubble at the top of your vision is really the liquid in your eye. And the blur that you're still seeing in most of your vision is because you are still looking through a gas bubble.
My doctor told me that I should look above the line to see my returning vision. He said that I would see a sliver of good vision and that sliver would get larger and larger as the bubble shrinks. Web sites I read said much the same thing. The problem was that when the line first appeared for me, I still couldn't see anything over the line. I just saw a blur. Nothing I was told and nothing I could find online explained this adequately. So I worried if the blur that I saw above the line was an indication that the vision that I'd get after my recovery would be poor. This wasn't the case, but I didn't understand what was really going on. With my slow-acting bubble, this uncertainty took about two weeks, between the third and fourth weeks after surgery. The dividing line between the bubble and the liquid in my eye slowly got lower, but when I looked above the line, I still only saw a blur. Eventually, as the bubble shrank further and the line got lower, I was able to start to see some detail above the line.
Here's what I finally concluded. When the bubble was still fairly large, like still taking up about 70% of my vision or so, when I looked upward above the bubble line I was forced to look up at too high an angle to be able to see any detail. The dividing line was still above my macula, the part of the retina that sees detail, so I was forced to look upward to see around the bubble. And though the bubble looked to me like it was at the bottom of my vision, in reality it was still up there. So I think that I was still looking up through the gas bubble. So I still couldn't see anything. But by the fourth week after surgery, the bubble line had dropped lower, about half way down through my visual field and opposite the macula, I was excited to be able to see some detail. I was able to see the tops of words on a movie screen. I was able to see the tops of the picture frames on our walls. Everything still looked like I was looking through a whitewashed window, but I could actually start to see some detail. I was very relieved and excited. As more time went on, the lower on TV and movie screens I could see detail, until by the sixth week, I was able to see the entire screens. My vision wasn't, and still isn't clear by seven weeks after surgery. It is blurred and small details shimmer so that small letters are hard to read, but at least I'm seeing almost an entire visual field above the shrinking bubble line.
So one of my main messages to other recovering patients is not to get too concerned when you start to see the bubble line get lower in your vision, but you still can't see anything above the line. If your recovery is similar to mine, as time goes along and the bubble line drops lower, you may be able to start to see some detail. Of course, there is no guarantee and each patient's visual progress will be different.
At this time, seven weeks after surgery, I can read the second or third line of an eye chart. The bubble sits as a sphere at the bottom of my vision so I get some peripheral vision and I can merge the vision from both eyes, with some difficulty and some double vision. I can't read newspaper print easily, mostly because we usually read by looking downward, and the bubble is still in the way of my downward vision. But I seem to be seeing slow improvement in my detail vision as the days and weeks go by.
I've read and I've been told not to expect to be able to know my eventual vision improvement until at least six months after surgery. But I'm encouraged at this point that I have a full field of vision and I can see the detail that I can see at this early stage.
So one of my main messages to other recovering patients is not to get too concerned when you start to see the bubble line get lower in your vision, but you still can't see anything above the line. If your recovery is similar to mine, as time goes along and the bubble line drops lower, you may be able to start to see some detail. Of course, there is no guarantee and each patient's visual progress will be different.
At this time, seven weeks after surgery, I can read the second or third line of an eye chart. The bubble sits as a sphere at the bottom of my vision so I get some peripheral vision and I can merge the vision from both eyes, with some difficulty and some double vision. I can't read newspaper print easily, mostly because we usually read by looking downward, and the bubble is still in the way of my downward vision. But I seem to be seeing slow improvement in my detail vision as the days and weeks go by.
I've read and I've been told not to expect to be able to know my eventual vision improvement until at least six months after surgery. But I'm encouraged at this point that I have a full field of vision and I can see the detail that I can see at this early stage.
Thank god I found your block. I had a vitrectomy with a gas bubble 2 weeks ago due to detached retina. The tear was at the top and I have to sleep upright until today. Now the bubble is already very small but my vision above the bubble is blurry, like looking through a greasy window. I was very worried and searches on the internet did not provide me a clear answer until I saw this post. So, it has been almost 9 months since this blog entry. I hope that your vision has recovered.
ReplyDeleteSame here! Two weeks after surgery and the bubble line showing up but so blurry above it.... Due to Corona crisis the doctors are not answering all calls… Thanks for giving me hope!
DeleteHow are you now? I’m 2 1/2 weeks post vitrectomy and am curious how you are now
Deletei am about 4 weeks post opt. i would love to see how your progress went. i still see greasy looking film. how long does that take to leave? i’m scared
Deletei am about 4 weeks post opt. anyone wanna chat?
Deletei am about 4 weeks post opt. anyone wanna chat?
DeletePlease provide an update
ReplyDeletethank you for posting this. I was concerned about the double vision
ReplyDeleteWhat I have learned post-vitrectomy
ReplyDeleteEach day your vision will be different. Although it is exciting as it improves, it is always something new to deal with. You won’t really have time to adjust. Just accept it is changing.
Looking through the bubble is like muddy water with a black curved top. It will slowly move down in your vision as it dissipates.
Your eye will exude white goo for weeks. Have clean tissues on hand.
Bright lights will cause glare. On the other hand, your vision will be better in lighted conditions. Wear eye patch or sunglasses might help. Find the best light for you daily.
You will stumble on curbs, elevated sidewalk cracks and run into things.
Your peripheral vision may not come back. Get used to turning your head to the bad side back and forth.
Driving at night is not a good idea. Avoid it. Take an Uber. Don’t assume your driving is okay during the daytime.
Your eye may feel scratchy, sore, or have a burst of pain when you try to focus, especially up close.
As your vision comes back, grayed-out or hazy spots/zones in your vision will appear and may not go away. It may be clear around the gray, but you cannot see through the gray spots.
You will feel off balance when in crowded situations. Ask folks to sit on your good side and speak to you from your good side. Try to place your bad side toward a wall or fixed object.
Ask your family member for their hand to help you navigate in unfamiliar territory.
You will see floaters, black specks/pepper and spots. These will change daily.
Even when your eye is closed, you may see floaters. You may feel like your eye is lit from within. So even with your eye patch on or your eye closed, you will see things.
Depth perception is bad. You may drop things, miss putting things into desired places. Try using your hands to fix on the place before putting the item down or into it.
Avoid dropping things. Your vision downward is the worst and finding dropped small items is going to be bad. Get on your hands and knees and feel your way around.
When seated on a bench or pew, put an item on your bad side. It can be startling when someone sits down beside you and you are not aware of it. This creates a bit of a space buffer.
Take frequent breaks. Close your eyes. Rest your eyes. You will tire easily in both eyes. Bring your patch with you. After 1-2 hours, you will fatigue.
Invest in a good eye patch. Keep it handy.
Wear glasses. It will afford some protection for your eye while up.
The redness in your eye will last weeks.
Of course, follow your physician’s instructions. He/she saved your eye! Be grateful and know you are blessed.
Try to avoid crowds. Keep your hands away from your face and use hand sanitizer. Catching a cold and blowing your nose is not good.
Your eye may be weepy.
Some days you will have double vision. Your eye patch will help.
A flexible neck pillow (roll of foam beads with a clasp) saved my neck. I used during the positioning period to help me sleep upright.
You will want to stay home more than you think. You will sleep more than you expect.
Everyone’s journey is unique. Just because I experienced these things, does not mean you will too.
It is a lot harder than you think!
This too shall pass!
Lupita Waters (Organizer)July 15, 2018 at 3:25 PM
It’s been one week today since my vitrectomy surgery. I am thankful for finding this site and the information provided. Blessed that my site was saved. I am experiencing everything you wrote about. Praying that my vision recovers completely. Thank you for the great information.
DeleteThank you! I was scared but u described exactly what im going thru right now. i hope gor a good recovery. its been 2 months now still have gray blurry vision.
DeleteThank you! I was scared but u described exactly what im going thru right now. i hope gor a good recovery. its been 2 months now still have gray blurry vision.
DeleteThank you! I was scared but u described exactly what im going thru right now. i hope gor a good recovery. its been 2 months now still have gray blurry vision.
DeleteThank you! I was scared but u described exactly what im going thru right now. i hope gor a good recovery. its been 2 months now still have gray blurry vision.
DeleteThank you! I was scared but u described exactly what im going thru right now. i hope gor a good recovery. its been 2 months now still have gray blurry vision.
DeleteThank you! I was scared but u described exactly what im going thru right now. i hope gor a good recovery. its been 2 months now still have gray blurry vision.
DeleteThank you for describing your experience. It has been 5 weeks today since my vitrectomy. I was concerned with what I am able to see above the line but you added that you may see gray spots/hazy zones and I am seeing one of those for a couple of weeks now. I am hoping this hazy spot will go away as my vision gets clearer. Thanks again for great details on your experience.
DeleteHad my vitrectomy early Feb21 and silicon oil injected. In April additional cryo and laser work to help retina bonding. Jun8th oil removed, June9th more laser work, June10th retina started detaching again, not a great day! Same day C3F8 injected, 5days later more laser treatment, so now into my second week with the bubble and a way to go. Thanks for sharing your experiences it’s a huge comfort. My vision above the meniscus is milky and shimmery, but my big joy is seeing my finger nail when I look straight down! Best of luck everyone! JM
DeleteHad my vitrectomy early Feb21 and silicon oil injected. In April additional cryo and laser work to help retina bonding. Jun8th oil removed, June9th more laser work, June10th retina started detaching again, not a great day! Same day C3F8 injected, 5days later more laser treatment, so now into my second week with the bubble and a way to go. Thanks for sharing your experiences it’s a huge comfort. My vision above the meniscus is milky and shimmery, but my big joy is seeing my finger nail when I look straight down! Best of luck everyone! JM
DeleteI would like to know how long after the vitrectomy we can use contact lens again. I'm now on my fifth week after the surgery. Thanks
ReplyDeleteI have just found this blog 13 days after surgery for a detached retina.It is very informative thank you. There is another blog called RD Ramblings which gives more insight into this condition which helped me whilst posturing on my right side for 7 days.It is not only informative but humorous (no eye pun intended) as well. I wish everyone well
ReplyDeleteTHANK YOU! I was just on the verge of a panic attack over the state of my vision three weeks out from surgery. I will be a little more patient now.
ReplyDeleteI went 100 persent blind rip retna fishing rod could see good before had rip fix had gas bubble silicone lazer I could see after surgery each day more blurry put shots eye got better then blur up again 8 months back forth needles eye place closed covid never told me so sent me other eye doctor he did shots helped little then said eye not draining need surgery after 12 months or more they wanted 350 dollars and 50 dollars every time walk do have humana at time I could not afford 200 per scripts either had done in Portland Maine surgerys so moved to pa 3months ago I couldn't afford that 350 and 50 so came pa called eye doctor she said need surgery not draining and wont help see again so I freaked I called welfare said I need help persciptions my humana sucs so I been on disability 3half years guy welfare said i have railroad retirement benefits i guess after 2 years medicare kicks in i didnt no he got me back pay and Medicare and don't pay 144 month anymore i wonder if i was covered automatic after 2 years my scripts only 3 dollars now and i wonder if i should of had railroad benefits year half ago i wouldn't be blind if new had Medicare because couldn't afford 350 and 50 and best script i was stuck 20 scripts instead 250doooollar ones ..So i guess I'm blind over covid not haven 400 or doctor screwed up i had 100 needles in my eye my purple giant round and my eye cracked left see shadow what do i do
DeleteDoctor screwed up period
DeleteSo pleased I found this blog .I am only in day two after the op.and to be honest had no idea how bad my eye would be after the op. Looks like I am in for a long haul .it is good to hear someone with the same look as me
ReplyDeleteAnyone have double vision and an that doesn’t see straight...it wanders to the right. I had the silicone oil bubble removed and a gas bubble put in and a repair for a 5% detachment. I am just hoping my muscle wasn’t injured in my eye
ReplyDeleteThis is such a great resource that you are providing and you give it away for free. Retinal Detachment
ReplyDeleteI am 10 days post surgery to repair a macula hole. I am elated to find these posts. I don't know which gases were used although I am restricted from elevation changes and flying for 2 months. Patience is understated. I just yesterday was able to enjoy TV, although blurry, viewing was above the bubble. I am hopeful and feeling positive.
ReplyDeleteThanks so much for writing this blog! I fully expected to see clearly above the bubble as it decreased, and instead it was like looking through a greasy window. I was scared and concerned thinking something had gone terribly wrong. I will be patient now with hope that time will reveal more. Thanks again!
ReplyDeleteThank you, most helpful and reassuring .
ReplyDeleteThank you! I was not in horror or anything, and I feel I have an excellent doctor / surgeon, but he is not always the best communicator. I was hoping to find some finer details online and after searching for DAYS I found your page!!
ReplyDeleteSo helpful to read about others' experiences! Like Kevin, I have an excellent surgeon, but he just falls down a bit when it comes to informing patients what to expect. Maybe some of that is because experiences can be so varied? I started out having a vitrectomy to fix a macular pucker, but a blood vessel ruptured and my retina started to detach, so the surgeon had to change plans midstream, and put stabilizing oil in my eye to help the retina stay in place. Two months later he went back in to try again, with the plan to also put a silicone buckle around the retina and remove the cataract that had formed as a result of the first surgery. This time I ended up with the gas bubble (which was unexpected), a few laser shots (also unexpected) to help cauterize places that looked like they might cause trouble, and the decision was made to wait to do the vitrectomy till a few more months down the road, to let the retina heal further (one more unexpected result). Because the eye is not going to be in its final shape for at least that long, I also won't get the lens implant that usually is done at the same time as the cataract removal (THAT part was expected).
ReplyDeleteThe symptom that sent me looking on the internet today showed up a few days ago, when the gas bubble finally dissipated, at least mostly. Ever since then, it's been like someone drew a gray transparent screen down over that eye, covered with a pattern that looks sort of floral, sort of like the part of a tiger's stripes that is more scythe-shaped. My boyfriend and I have speculated that what I'm seeing is the blood vessels still present on my macula, which kind of makes sense. I'll call my eye doctor first thing tomorrow (Monday) to see what he says, but I've been worrying about this over the weekend and wondering if anyone else has had anything similar happen.
--Ms. Flis
How did it turn out for you? I hope all is well.
DeleteI am 7 weeks out from surgery for retinal detachment with a scleral band and a gas bubble. I never expected it to take this long, but my doctor says it may be another 4 weeks or so. My bubble is very slow in going away. The vision does change daily, and what others have said is close to my experience as well. I still am not comfortable driving but a mile or two. Previously I had lasik surgery and cataract lens implants, and I expected this to be similar. It is NOT!! Much much worse. I usually have about a 30-60 minute "attack" every day when I am tired of not seeing well, but then I remember to be grateful that eventually I will see again. One of the difficult things is that people around you---friends and family---can't really understand the reality of your vision limitations, and that is hard. So ask for help when you need it.
ReplyDeleteWell, this deteriorated from an informative series of posts regarding retinopexy, gas bubbles and the like to some weird stuff. In an effort to get us back on track, I am moving into my 9th week post surgery for a detached retina and my bubble is not acting like anyone else's I've read about. For one thing, a month after surgery, the opthamologist said the bubble was only reduced 15%; he seemed somewhat taken aback. I have what seems to be very blurry, greasy limited vision above that black line which denotes the bubble's edge; however, I also have a curved black line that follows the field of vision on my left side.
ReplyDeleteThe best way I can describe this is, imagine a pair of eyeglasses dangling from your ear a few inches from your face. Looking down has the same effect, except the top and left parts of the *frame* are thick black lines, but the bottom of these imaginary eyeglasses have a thin, faint black line. Furthermore, there's no illusory frame on the right side of my eye.
I am not good at illustrating via a word picture, but like I said, I haven't run across any black lines experienced by others, save for at the top of their bubble.
My bubble broke into hundreds of tinier ones and I've had the usual floaters, black dots, light flashes, etc. If anyone can shed some light (ha!) on why my bubble is behaving badly, please do so! I have to see the surgeon again this week and my bet is if my babble's down to 40%, I'll be lucky!
HOLY COW. THANK YOU FOR THIS INFORMATION. I've been worried about my vision. I'm 3 week after surgery and still have blurry vision from the exact same bubble. I'll dial my impatience and worry back!
ReplyDeletedetached Retina is a potential "side effect" of Cataracts.
ReplyDeletemy surgery was 2 1/2s ago and Bubble is completely gone. vision is 20/70 but blurry. hoping for clearing as time goes on. Great blog for reflection because you loss all questions when the surgeon comes in and says were doing surgery tomorrow at 700am. the acuity and dexterity of the this eye bothers me that its off. this is my dominant eye to boot. i had a friend that had Detachment due to cataracts.
Thanks for posting this although your experience now makes me a little nervous.
ReplyDeleteI had a Vitrectomy on my left eye a week ago today for a detached retina and a number of small tears.
I have had the gas bubble (long acting C3F8) and am a little worried as today I can see the wavey black line you describe.
My vision below this line is blurry and basically only light and dark. I can see my fingers if I hold my hand very close to my face. As you describe.
My worry specifically is that above the wavey line at the moment it’s actually much worse vision darker and even more blurred. Not better as you and others describe. I am hoping this is because it’s too early yet and what I am seeing is the top of the bubble but, it’s not low enough yet. My worry is as this goes lower my vision gets worse!!
I guess I’ll see how it is on Monday and maybe call the hospital.
Thanks again,